It’s not easy, being here with you. So many emotions bubble constantly to the surface, and I struggle to keep my face from betraying them—that would just confuse and upset you even more.
“Now, was that my sister who was just here?” you ask-after your daughter leaves- and I hurry to the bathroom before you can see my tears. When Grandpa tells me that you couldn’t remember your name to tell the doctor, my throat closes up and my eyes begin to itch before my brain has registered his entire sentence. The constant questions about who you are, what we’re doing next, who I am, who your family is, what I’m doing here, and how you’re supposed to perform basic functions—leave me to hide in the bathroom, cry in the car, and blame my puffy eyes on allergies.
It’s not always sad, though, sometimes it’s frustrating. “What is that you say you’re making?” you’ll ask. I answer, you put away a dish or two, and then, “Now what is that called that you said you were making?” This will repeat three or four times, sometimes more. I get annoyed on the inside, shove the feeling down, and struggle to answer with a smile again. Within minutes, I’m feeling guilty. You can’t help it, this repeating of the questions. I should be happy that you can remember why I’m standing at the stove at all.
I watch you sit down with a newspaper. Perhaps you remember that the doctor told you to read more, perhaps you just saw it and decided to pick it up. I know that within minutes, you will be asking questions about its content, what certain words mean, and “Now, Gene, do we know who this thing is talking about?”
We try to get around the emotion of it all. We make jokes, we ignore the facts, we pretend like I’m only here to visit my friends. “Well, even I occasionally forget why I walked into a room,” we say. It’s easy for me to avoid reality when I’m sitting at home. I can let the glass be half-full when I’m only remembering, not experiencing. It’s not easy, being here with you. Every question, every repeated word, every forgotten name—digs at my heart a little harder, dampens my spirits a little more.